About Me- autism app


Summary

The ‘About Me’ app was created in response to feedback from young people with autism and will make it easier for people with autism to access, hold and share information about their condition with professionals. The app aims to put the child at the centre of clinical practice and will provide a low cost solution to information sharing. The new mobile app, currently available on the Android platform, contains key information about a person with autism including a profile of their needs and strengths, a progress tracker of the assessment process and information about support services available. The mobile app development was funded by the Wales Health Technology Challenge. It can be downloaded free of charge from the Google Play Store, search for ‘About Me (autism passport)’ or from https://play.google.com/store/apps/details?id=ua.com.doublekey.aboutme&hl=en_GB
  • About the project

    Contact Details

    Contact Name: Alkasahuja
    Telephone: 01633 436831
    Email: [email protected]
    Address: Aneurin Bevan University Health Board Ty Bryn, St Cadocs Hospital Newport NP18 3XQ


    The project

    Main topic area(s): Mental Health, Schools and Colleges
    Target Group(s): Children and Young People, Working Age Adults

  • Planning

    Activity Type/Topic

    The new mobile app, currently available on the Android platform, contains key information about a person with autism including a profile of their needs and strengths, a progress tracker of the assessment process and information about support services available.

    The app aims to put the child at the centre of clinical practice and will provide a low cost solution to information sharing.

     

    Start date: 03-11-2016

    Geographical setting/dimension of the project: International project, e.g. project delivered in countries other than the UK

    Local Area: Mid Wales, North Wales, South West Wales

    Was the initiative in response to: Funding Opportunity, Needs Assessment

    Does the initiative link with any policies: International Policies, UK Policies, Wales Policies

    Aims and objectives

    The ‘About Me’ app was created in response to feedback from young people with autism and will make it easier for people with autism to access, hold and share information about their condition with professionals.

    The conversion to an electronic form was done in response to popular demand from the young people themselves.

    The app aims to put the child at the centre of clinical practice and will provide a low cost solution to information sharing.

     

    Research carried out in the Health Board area highlighted that there was a need for improvement both during and after the diagnostic assessment of autism, particularly around the sharing of information which often resulted in the need to repeat an individual’s history at appointments.

     

    The Autism Passport is an example of successful co-production between young people and health professionals.

    It went through the stages of development of a paper folder version at the Health Board, with young people with autism designing the folder together with health professionals.

    Following requests for an electronic version a prototype App version was created by a talented young person with Autism, with support from Swansea University’s Health Tech fund.

    Finally, the South East Wales Academic Health Science Partnership funded an NHS-academic-commercial partnership between the Centre for Autism Research Intervention and Diagnostic (CARIAD) team at Aneurin Bevan University Health Board, Swansea University and Smyl Connect, which enabled the creation of the Android App. Development also took in the views of professionals across social services, the voluntary sector and technology providers.

     

    The mobile app development was funded by the Wales Health Technology Challenge. It can be downloaded free of charge from the Google Play Store, search for ‘About Me (autism passport)’ or from https://play.google.com/store/apps/details?id=ua.com.doublekey.aboutme&hl=en_GB

     

     

  • Delivery

    Informed Delivery Method: Needs assessment, Previous practice, Research findings or evaluation

    Pilot Conducted: Yes

    Beneficiaries Engaged: Beneficiaries were actively involved in monitoring/evaluation, Beneficiaries were actively involved in the delivery of the project, Beneficiaries were actively involved in the design of the project, Beneficiaries were part of a stakeholder group

    Partner Collaboration: Community Groups / Organisations, Education Sector, Health Services, Local Authorities, Statutory sector agencies, Voluntary Agencies

  • Monitoring and Evaluation

    Methods / Tools: Qualitative, Quantitative

    Methods / tools used for monitoring and evaluation:

    A qualitative study was conducted by the CARIAD team to evaluate the use of the paper passport. The recurrent themes were:

     Better information sharing

     Clarity in the process for professionals and parents

     Feeling of being supported and validated

     Timing and setting for use

     Desire for future improvements

    The Autism Passport is acknowledged as being an innovative tool which counters the barriers of multi professional working and the study gave good insight into the benefits and challenges of the new tool with a largely positive experience.

    Useability trials with young people with autism and their carers during app development

    Focus groups with professionals from health, education, third sector and social services

    Evaluated: Participant feedback

    Key Findings (Monitoring, research and evaluation)

    Feedback from parents: "I do think that ABOUT ME is useful as it focuses the mind on what is positive. There was so much negativity at the point of my son's diagnosis that I would have welcomed any approach that viewed my son as a child rather than a problem."

    Feedback from professionals suggests that it enhances delivery of person centred care and supports transparency and accountability in clinical practice. The passport supports improved planning and management thereby reducing stress for everyone.

  • Sustainability & Learning Points

    Exit Strategy: Don’t know

    Key Learning Points:

    "ABOUT ME" mobile app development has been a challenging but rewarding project as it has put the child at the centre of clinical practice. Professional and parental collaboration has driven this initiative and has led to changes in work practice.

    The development of mobile app has proven to be a catalyst for further development as this framework could be used to work with children and adults with other lifelong conditions such as epilepsy, schizophrenia, or physical conditions such as diabetes and at times of transitions or crisis.

    Web Links:

    The mobile app development was funded by the Wales Health Technology Challenge. It can be downloaded free of charge from the Google Play Store, search for ‘About Me (autism passport)’ or from https://play.google.com/store/apps/details?id=ua.com.doublekey.aboutme&hl=en_GB